‘TN govt should address rare disease patients’

”Health is a State subject and Tamilnadu has always been a people-focused progressive, welfare State. Despite several judicial proceedings since 2017, not a single rare disease patient has been provided treatment. Continue Reading

Lack of policy hampers rare diseases treatment

Having 95 patients registered with rare disorders at the Institute of Child Health and Hospital for Children (ICH & HC), patients are awaiting policy-level changes to avail of treatment for conditions like lysosomal storage disorders (LSDs), Krabbe’s disease and skeletal dysplasia. Continue Reading