lysosomal storage disorders

‘TN govt should address rare disease patients’

Posted on by Samuel P

”Health is a State subject and Tamilnadu has always been a people-focused progressive, welfare State. Despite several judicial proceedings since 2017, not a single rare disease patient has been provided treatment. Continue Reading →

Lack of policy hampers rare diseases treatment

Posted on by Bhavani Prabhakar

Having 95 patients registered with rare disorders at the Institute of Child Health and Hospital for Children (ICH & HC), patients are awaiting policy-level changes to avail of treatment for conditions like lysosomal storage disorders (LSDs), Krabbe’s disease and skeletal dysplasia. Continue Reading →